M.E. Awareness Week

Quotations on blue

It’s M.E. Awareness Week 9th-15th May in the UK, and International M.E. Awareness Day today (May 12th). M.E. stands for Myalgic Encephalomyelitis and is defined by the World Health Organisation as a neurological disease. There are 250,000 people living with this debilitating illness in the UK alone, of which I am one.

For many of us the illness was triggered by a viral infection, although there are other possible triggers. The best-known symptom is fatigue, sometimes severe fatigue, although this does lead to misconceptions about the illness. It’s not just about being tired! We have limited reserves of energy, and when we’ve used them up we get ill. ‘Post-exertional malaise’ – a delayed and prolonged reaction to activity – is a defining feature of M.E.

For me, the main problems are headaches/migraines and low blood pressure/dizziness. For others, symptoms include muscle and joint weakness and pain, light and noise sensitivity, and ‘brain fog’ (difficulty speaking or thinking clearly). M.E. varies hugely in severity – a few people lead an almost-normal life while others are bed-bound. Most of us are somewhere in the middle, but severely affected patients live with constant exhaustion and pain. M.E. also fluctuates – we tend to have good days and bad days, and on a good day it can seem to others as though there’s nothing wrong with some of us. If only!

This illness can vary greatly so it’s hard to do it justice in a short paragraph, and I know I won’t have described everybody’s experience (it’s not called a complex multi-system disorder for nothing!). The M.E. Association explains all this sooo much better than I can – please visit their website for more information on the condition and the current research, and to support their valuable work if you can.

Today’s artwork includes some of my favourite quotations, the ones that reflect my experience of, and attitude to, life with a chronic medical condition. Some of the quotes reflect the courage and kindness of my family and my M.E. friends. What words of wisdom get you through the day (and night)?




3 thoughts on “M.E. Awareness Week

  1. Jessica Cangiano says:

    As a fellow CFS/ME fighter (it’s was one of my first chronic illnesses), this soulful post brought tears to my eyes. I love and appreciate the wonderful selection of quotes that you’ve highlighted here. They definitely speak volumes for those of us battling chronic illnesses/pain/disability the world over.

    Beautiful and very poignant creation, my dear.

    Sending countless gentle hugs your way,
    ♥ Jessica

    • darkandbrightart says:

      Thank you for your very kind words, Jessica. Through reading Chronically Vintage, and seeing the way you combine your creative talent and passion for vintage with being open about the difficulties you face, I realised this didn’t stop being an art blog if I occasionally talked about other issues in my life. Raising awareness of ME/CFS has become increasingly important to me, not least because so many people with this disease are too ill to speak out.

      I made a note of the Nelson Mandela quote you used recently – “May your choices reflect your hopes, not your fears” – such optimistic yet practical advice! And it’s definitely a sentiment that shines through in your own writing, Jessica.

      Returning the hugs and hoping you’re getting on ok. xxx

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